Down Syndrome Awareness Month - What I Want You To Know

October is designated as Down Syndrome Awareness month. For us parents blessed with children with Down Syndrome, every day is a day for awareness.

I know I have said it before, but I am an open book when it comes to my experiences of parenting Cody. I want people to know the good and the bad because I don't want them to feel the pressure of having to terminate their pregnancy because of a diagnosis. I want people to realize the potential of individuals with Down Syndrome. I also want parents of children with Down Syndrome to know that they aren't alone. If you are going through an experience (good or bad), I am sure someone else has gone through it also. There is always someone willing to support you and cheer you on through the more challenging times.

I was ignorant about Down Syndrome until I found out (at 5 months pregnant) that Cody had Down Syndrome. I was terrified of the unknown. I didn't think I was a good enough parent to give him everything he needs.

When I look at this face and this smile, I know I am doing pretty darn well. :)

 

And when I see this smile, I remember that life is good....scratch "good", make that AWESOME!

Is it challenging? Do I worry about his future? Do I worry that his feelings will get hurt when someone treats him as "different"? Do I not want to let go of him and try to protect him as much as possible? Bet your bottom dollar the answers are all "yes", but I have the same worries and challenges for my "typical" child, too, and I'm sure my parents had the same challenges and worries about me.

He is my daily reminder that everything is okay. His world is as perfect as he sees it and I need to see the same thing.

As Down Syndrome Awareness Month comes to an end, I want to share the top things I want you to know.

• Down Syndrome is not contagious. You will not catch it so don't be afraid to talk to someone with Down Syndrome.
• Though some may not be as verbal as their peers, they understand what you are saying. Be nice and talk to them as you would anyone else their age.
• Some of their characteristics and quirkiness you may perceive as "odd", but really, who isn't a little quirky or odd? :)
• Anything you can do, they can do, too. My little guy can get down and funky with the rest of them in Hip Hop class and learn an entire routine. I know adults that can't do that! :)

and the most important one

• Don't treat them any differently than you would any other person. Bottom line, they are still people with feelings and hearts.

If ever you have questions about Down Syndrome, please feel free to just ask! :)